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atrial fibrillation: with updates

It's hardly Oz. While we cannot see behind the curtain, we can hear quite well. You look up from the paperwork when we hear, "My, what a beautiful airway you have." So much better for keeping your teeth during anesthesia. "I bet no one's ever told you that before, but it's true. Lovely passageway."

I can't help but think that passageway isn't a word to be used lightly right before surgery. It's a tunnel, lady. You know, if you're going to warn patients about knocked-out teeth and warm tingling feelings, you should also make a point of warning them to move away from the light.

The patient behind the curtain is a young woman whose heart rate sped up abnormally when she was thirteen. She is having an ablation today, a procedure we've researched for you--the next leg of this, after these paddles,  will be an ablation to correct your persistent atrial fibrillation. Or at least, we think. We don't know anything for sure, other than you're in constant atrial fibrillation. And you know, quite well, that your blood is nice and thin thanks to all that blood thinner you've been choking down each night, after setting the tater tots in their cribs, going weekly to a clinic to ensure your blood is in the proper "anti-stroke" range.

I just kissed you on the head, and you, just as Lucas would say, looked up at me and said, "Up, up?" Hoping I might scoop you up and whisk you away. Soon, honey belle, soon. Let's just fill that passageway of yours for a sec, and then I'll see what I can do to get you out of this magical land of Oz.

UPDATE: They've just now discovered Phil has a complete (stage three) heart block. We had never heard this before. Tomorrow morning Phil is getting a dual-lead pace maker. The atrial fibrillation will likely return, we're told, so a possible ablation is in his future. For now, though, my 41-year-old husband is getting a pace maker. One day at a time.

******************

It's morning, and now, unfortunately, the atrial fibrillation they shocked him out of yesterday is already back. At his young age Atrial fibrillation shouldn't go untreated. With it, Phil is at very high risk of stroke, and his atrium grows larger... The larger it grows, the harder it is to repair. To repair means an ablation as well as a pacemaker, but we'll see what the doctor says. A nurse came running in early this morning, so early it was still night. "Are you okay? Your heart beat is at 22 beats a minute. People have never seen this before. The medical community here is perplexed, an annoying word that reminds me of legwarmers and exercise videos. His normal resting heart rate is 32, and he has always had exceptional blood pressure, nothing high. This is an electrical problem and has nothing to do with diet, exercise, or my cooking.

Thank you so much, again for reaching out and for all the prayers and good thoughts. I will update when I learn/know more.

July 30, 2008 in illness | Permalink

Comments

Hi sweetie,

My husband and I are praying for you and yours.

Posted by: Corinna | Jul 30, 2008 8:05:44 PM

A coworker had cardiac ablation. It went well and she's doing great. I hope Phil's procedure is equally as successful.

Posted by: Betsey | Jul 30, 2008 8:19:55 PM

A coworker had cardiac ablation. It went well and she's doing great. I hope Phil's procedure is equally as successful.

Posted by: Betsey | Jul 30, 2008 8:19:55 PM

Oh man. Sending all good thoughts and a virtual teleporter for a speedy passage back down the yellow brick road.

Posted by: Mom101 | Jul 30, 2008 8:28:08 PM

Is this Phil that is having the procedure!? I'm confused.

My Dad had A-Fib. I was so terrified I couldn't stop spontaneously bursting into tears every time I opened my mouth. MY DAD?! He works in the heart industry, how is that even possible.

But you know, he had that funky little ablation 3 years ago and has been good as new ever since. It wasn't really a fun procedure, but not a huge deal...

But it's scary. Our hearts always are. And I'm sorry you are going through this, no matter who you are talking about.

Hugs,
Jessica

Posted by: jessica | Jul 30, 2008 8:45:34 PM

Oh, God, Stephanie. Never a dull moment in the Beer / Klein household is there? Get well and stay strong vibes are coming to Phil from all corners of the internet...

Posted by: misstraceynolan | Jul 30, 2008 8:52:59 PM

After a very stressful period in his life, a good friend started to have "the flutters" (as we called them). When it got to be a nightly thing, he too, had the ablation surgery. He is doing GREAT now, and hasn't been to the hospital since. Fingers crossed for Phil. Please keep us posted.

Posted by: Arli | Jul 30, 2008 9:08:35 PM

Oh dear. While I'm not clear on exactly what Phil's having (had?) done, but I have enough of a sense to feel anxious yet reassured that it's sort of kind of routine -- realizing that of course it's not routine if it's you or your spouse or child or parent. Hoping you'll post soon that all's well!

Posted by: Barbara E. | Jul 30, 2008 9:26:04 PM

Lots of well wishes to you and your family.

Posted by: Cori | Jul 30, 2008 9:29:45 PM

Oh Stephanie. I hope everything works out for both of your sakes. You're such a strong woman - I have no doubt you'll be able to get through it all.

Best of wishes to you.

Posted by: Lizzy | Jul 30, 2008 9:32:27 PM

Once again - sending courage and strength from here.

Posted by: 3 teens' mom | Jul 30, 2008 9:55:54 PM

Prayers, again, and always. What a rollercoaster. (((HUGGS)))

Posted by: Cynda | Jul 30, 2008 10:09:29 PM

Also praying for you and yours. Catching updates on twitter.

Posted by: Steph | Jul 30, 2008 10:40:26 PM

LIght and love to you and Phil and the taters. All of you are in my heart and in my prayers.

Posted by: Jerri Brummond | Jul 30, 2008 10:53:42 PM

Thinking of all four of you. Hang in there. xoxo

Posted by: Alice | Jul 30, 2008 10:54:31 PM

Light and love to you and Phil and the taters. All of you are in my heart and in my prayers.

Posted by: Jerri | Jul 30, 2008 10:55:49 PM

Sending good thoughts your way.

Posted by: sizzle | Jul 30, 2008 10:57:14 PM

Prayers and well wishes from this cyber stranger to you and yours. How are you holding up? Do you have other family with you to help? Be well Phil.

Posted by: Colleen | Jul 30, 2008 10:58:16 PM

Sending much good energy to you and Phil, Stephanie!

Be well!

Posted by: Ron | Jul 30, 2008 11:02:32 PM

Hang in there, you guys are as strong as lead. I'll keep praying and checking and hoping, I just know he'll be fine.

You will too.

Posted by: eLGee | Jul 30, 2008 11:07:05 PM

prayers for phil, you and the babies. hope the surgery goes well!

Posted by: flora | Jul 30, 2008 11:08:14 PM

Sending good thoughts your way.

Posted by: sprizee | Jul 30, 2008 11:15:24 PM

Oh honey. You must be so terrified! I'll be thinking about you all.

Posted by: Cecily | Jul 30, 2008 11:16:45 PM

best wishes for all of you!

Posted by: ubers | Jul 30, 2008 11:27:30 PM


I know it's really scary, but the good news is the problem has been found and is being taken care of.

Praying for a quick recovery.

Posted by: LindaS. | Jul 30, 2008 11:28:24 PM

I'm thinking of you and Phil. Hope you are all okay.

Posted by: Julie Mead | Jul 30, 2008 11:32:08 PM

Prayers and good thoughts coming your way.

Posted by: Kimberly | Jul 30, 2008 11:42:33 PM

Oh man, Steph. I am thinking and praying for you all.

Posted by: Manic Mommy | Jul 30, 2008 11:44:35 PM

I have a ICD device, a combination of a defibrilator and a pacemaker. I also have arterial fibrilation that is caused by my generic heart defect. Having the device installed is really easy peasy. Having it in your body makes pretty much no difference to your daily activity besides being unable to walk thru a metal detector. They give you a card to show so that you don't even have to argue the fact. And it gets you thru the airline security lines really fast!

I hope the surgery goes well. If you or Phil has a question about the recovery and the whole 'how do I live with this thing', I'm happy to help.

Posted by: margalit | Jul 31, 2008 12:17:36 AM

Sending you and your family good thoughts! I am sure all will turn out well.

Posted by: Donna | Jul 31, 2008 12:34:37 AM

I will keep you and Phil in my thoughts and prayers!! The entry was wonderfully written, too.

Posted by: Tobey | Jul 31, 2008 12:43:58 AM

Mishebeirach - a prayer for the renewal of body and spirit.

Thinking of you and Phil and sending you cyber smiles.

Posted by: DamWrite | Jul 31, 2008 12:46:09 AM

My thoughts are with you and your family. Wishing you the best.

Posted by: gabriela | Jul 31, 2008 1:04:24 AM

Warm thoughts and healing prayers, Stephanie!

Posted by: Jenny | Jul 31, 2008 1:08:39 AM

Oh no! I hope it all works like dream and there are no unforseen problems. Keeping you all in mind, Sarah

Posted by: sarah | Jul 31, 2008 1:12:38 AM

What is it that they say about life, that it keeps biting you on the ass? My thoughts and good wishes are with Phil for a quick recovery and for the rest of you to soon be over the stress.

Posted by: Carole | Jul 31, 2008 1:32:11 AM

What a horrible thing to have to go through. If he comes to need an ablation - make sure that you do some research and get the best cardiologist you can find to do the procedure. I worked in the field and some are good and some not so good and I wouldn't want any not so good doctor doing a procedure like that.

Posted by: Kim | Jul 31, 2008 1:52:27 AM

I am praying something fierce for you four.

Posted by: Abigail M. Schilling | Jul 31, 2008 2:19:03 AM

Many thoughts going to you until you can "up up" Phil again and sweep him away :)

Posted by: Ulli | Jul 31, 2008 6:57:59 AM

Hugs to you, phil and the beans. We are all thinking of you - I hope thousands of miles away you can feel that.

Posted by: semichrmd | Jul 31, 2008 7:19:37 AM

I have to decide by October whether to have ablation or not. I've heard wonder things about it, and some of the meds I take are making my hair fall out, so I'm considering it. The doctor who invented the procedure practices in Boston.

Posted by: Susan | Jul 31, 2008 7:26:52 AM

I wrote the above last night and didn't have time to post. I just saw your update. My father has AT, and we are currently researching the procedures, etc. This post was a little erie for me. Phil is in my prayers and I am sending you both strength. And Stephanie, it sounds like you are (amazingly) managing very well, all things considered.

Posted by: nh | Jul 31, 2008 7:43:35 AM

I wrote the above last night and didn't have time to post. I just saw your update. My father has AT, and we are currently researching the procedures, etc. This post was a little erie for me. Phil is in my prayers and I am sending you both strength. And Stephanie, it sounds like you are (amazingly) managing very well, all things considered.

Posted by: nh | Jul 31, 2008 7:45:26 AM

In response to a comment by Kellye to the post "Is special needs" a retarded term?"

FROM SK: Thanks for this. Phil is at a very high risk of stroke, and we constantly joke about it: subject for another post.

I guess this is it. Much strength from me to you and your terrific husband.

Posted by: Carol from SA | Jul 31, 2008 7:47:44 AM

Sending good thoughts and positive vibs your way. Just know you and Phil are in my thoughts hoping everything goes well.
Exactly what you said is all you can do....One day at a time.
You both will summon the strength to get through this too, somehow we all do.

HUGS to you...

Posted by: Cathy Bueti | Jul 31, 2008 7:57:17 AM

Oh girly! Could you POSSIBLY have more drama in your life???!!! I'm so sorry this is going on; you've been through so much in the past 2-3 years.

Many hugs and thoughts and prayers coming your way.

Posted by: bestmansgrl | Jul 31, 2008 8:21:54 AM

It's hell getting old, especially when it hits too young. My husband had to get an arterial stent at 43. It's scary. I'll keep you all in my prayers and be checking back for updates.

Posted by: Barbara S. | Jul 31, 2008 8:32:50 AM

positive thoughts, tons of hugs, all the best. -s

Posted by: Yecats | Jul 31, 2008 8:53:20 AM

Oh Stephanie, this is so unfair.
I'm sending lots of good vibes your way.

Posted by: Torrie | Jul 31, 2008 9:01:54 AM

you are very strong. I don't care how many people you manage to piss off with your sometimes random posts, but you've got one thing going for you that always reminds me of what brings me back to the blog and to you.

You are a very strong woman that is tested time and again. Nothing and no one can take that away from you.

Much love to your family.

Posted by: carolina | Jul 31, 2008 9:04:46 AM

OMG, Steph.

Prayers and good thoughts and lots of strength being sent your way from me.

Big hugs.
xoxo

Posted by: Sarah | Jul 31, 2008 9:09:56 AM

Thoughts and prayers. Was there with my ex-husband so I have some idea of what you are feeling right now. ((hug))

Posted by: Marcy | Jul 31, 2008 9:11:35 AM

We should all go out and have "stroke burgers" and laugh/cry about how cruel life can be.

Good luck to all of you. My heart is with you.

Posted by: kellye | Jul 31, 2008 9:13:14 AM

Hang in there you guys. Best of luck.

Posted by: Jane | Jul 31, 2008 9:17:56 AM

Big hugs, thoughts and prayers to all of you!!!! Be well Phil.

Posted by: Kathryn | Jul 31, 2008 9:29:03 AM

Oh, Stephanie, I feel for you. My husband had an heart attack one year ago, at the age of 40. He recovered well, and now we're happy again with our little one year old girl.
Life is not easy, but bad things go away... and you will feel better soon. A big hug to you two.

Posted by: Serena from Italy | Jul 31, 2008 9:34:01 AM

I am a new reader to your writing. I just began "Straight Up and Dirty" minutes ago. Skipped to the end where you wrote your acknowledgments. I always do this. Bad habit of mine. Having only read the first chapter I inferred that you finally found love with a man named Phillip Beer and felt happy for you, even though I don't know you. Then I logged onto your blog and read what has just transpired to you and this love of yours. Is it possible to send hope to a stranger? I believe so.

Posted by: mebw | Jul 31, 2008 9:34:42 AM

Stephanie, I am praying for you, Phil and the little ones. I know in my heart he will be okay.

Posted by: Kate | Jul 31, 2008 9:42:39 AM

It's hearing about things like this that make me fear I won't have a partner, a family of my own, to support me when times get rough.

Through sickness and in health...you guys are truly lucky to have each other, in the purest and most honorable sense. Just like you are there for Phil, we are all here for you. Sending nothing but good wishes your way.

Posted by: Jenny NYC | Jul 31, 2008 9:44:17 AM

Many prayers and good wishes being sent your way..

Posted by: LolaD | Jul 31, 2008 10:09:26 AM

Healing thoughts being sent your way to your husband and your family.

Posted by: andrea | Jul 31, 2008 10:10:36 AM

I should have said this earlier, when I was going on about me; my thoughts and prayers are with you and Phil.

Posted by: Susan | Jul 31, 2008 10:39:55 AM

My prayers are with you and your family. All my best.

Posted by: Natasha (bklyn) | Jul 31, 2008 11:09:04 AM

Phil and you a will be in my prayers, Stephanie. That God will watch over Phil and all those in healthcare that are in charge of his care. (Make sure you get a little rest too)

Healing Hugs and thoughts to both of you.

3T

Posted by: 3rdtimesacharm( 3T ) | Jul 31, 2008 11:14:32 AM

My dad has been going through this since July 4th of last year. He ended up having a total of three ablation surgeries. He had a pacemaker put in before the three of those. On the third and final surgery, the doctor told him if he could not catch all the flutters, that he would disconnect and have him running soley on the pacemaker. Obviously, this was a last resort, but he is sooooo much better now. He has tons more energy and feels 500% better. I hope the best for you guys and prayers are with you.

Posted by: Mary | Jul 31, 2008 11:23:31 AM

Thinking about you & your family. So sorry he's going through this...

Posted by: Lisa Milton | Jul 31, 2008 11:24:03 AM

Just in case it helps in any way - you can add one more person to the list of people thinking of you all.

Posted by: sia_uk | Jul 31, 2008 11:37:20 AM

A-fib sucks. My dad (who is relatively young) was in A-fib for a few months and it took a few attempts of ablation to get it back to normal. Blood thinners are so crappy, especially when you have to go to a clinic every week to check the INR. I bet Phil is constantly worn out. So scary, lots of thoughts to you, Phil and the babes.

Posted by: rt | Jul 31, 2008 11:37:39 AM

Your strength is inspiring.

Thinking of you and hoping all is okay.

Posted by: Stephanie | Jul 31, 2008 11:46:45 AM

Stephanie - you, Phil and the twins are all in my prayers!

Posted by: Jess | Jul 31, 2008 11:51:59 AM

You and Phil are in my thoughts! Hoping everything goes well!

Posted by: Allison | Jul 31, 2008 11:53:05 AM

Just love, hugs and prayers.

Thinking of Phil and the rest of you...

Posted by: Janet Blank | Jul 31, 2008 11:55:46 AM

Stephanie, that's so scary. I hope that Phil is okay and I will have you and the wee ones in my thoughts.

Posted by: kari | Jul 31, 2008 11:56:50 AM

Wow. Quite a scare. I hope everything works itself out. Does he have heart problems in his family? Genetics can be an ass kicker sometimes. Im on blood pressure med and will be for the rest of my life. My mom had to start taking it at age 24. At least he knows now.
Positive thoughts for you both.

Posted by: Julie | Jul 31, 2008 11:58:33 AM

Our love and best wishes.

Wendy, Tyler, and Maddy

Posted by: Wendy | Jul 31, 2008 11:59:01 AM

:hug:

Posted by: Sara | Jul 31, 2008 11:59:23 AM

Thinking of you.....

xoxoxoxoxoxoxo

Posted by: Jen | Jul 31, 2008 12:06:27 PM

Well, fuck. All of my best wishes for a successful procedure.

I thought 40 was the new thirty, but I'm not finding that myself. I just came back from the cardiologist with a cholesterol level of 320. My 3 and 5 year old daughters have the same levels too, so I guess age is not the issue.

And we are healthy eaters. :(

Posted by: Susan | Jul 31, 2008 12:09:39 PM

I can't imagine the strength you must have to write so cleverly about such a stressful time. The news, posts and Phil saying "up,up" made me tear up here at work. Positive thoughts and well wishes for y'all.

Posted by: BethM | Jul 31, 2008 12:11:33 PM

Stephanie, you are so strong and you will get through this, just like you get through everything else. It seems as though you've had to bear way too much already, but if anyone can pull their family through this you can. I wish Phil nothing but good health and happiness from you and the beans.

Posted by: Julie | Jul 31, 2008 12:13:51 PM

You are all in my thoughts & prayers.

Posted by: Suburban Turmoil | Jul 31, 2008 12:13:58 PM

Stephanie,

My brother is 33. He has had ablation, and for a different surgeru he was given both a pacemaker and an internal defibrillator (so he can get shocked from the inside out, rather than from the outside in).

My dad is dad-aged, and took the blood thinners after his open-heart surgery. If you want to talk ...

Thinking successful surgery thoughts for Phil.

Posted by: GreeN | Jul 31, 2008 12:18:22 PM

Good energy and prayers for you and Phil.

Posted by: Diana | Jul 31, 2008 12:18:29 PM

Sending many good thoughts and strength to both you and Phil.

Posted by: Tiffany | Jul 31, 2008 12:34:45 PM

your husband is in my prayers stephanie

Posted by: Meghan | Jul 31, 2008 12:35:30 PM

Forgot to ask:

They put him on blood thinners, right?

Posted by: Susan | Jul 31, 2008 12:44:19 PM

Thinking of you, Phil and your family, and sending best wishes that all goes well and that you and Phil will be back home soon, sitting on that sofa of yours with the taters making you laugh about how crazy life can be. Wishing Phil the speediest of recoveries.

Posted by: Andrea | Jul 31, 2008 1:05:23 PM

Just in case tomorrow is now today, Phil is in my prayers. As are you.

It looked like your story had a happy ending when you got pregnant, again when you and Phil got married, again when the children were born (even though Phil wasn't there).

The thing is, every end is also a beginning and the story keeps moving. I'm looking forward to reading a happy ending to this chapter and to many, many more happy endings for your family.

Blessings be.

Posted by: Jerri | Jul 31, 2008 1:28:35 PM

stephanie, my prayers are with you and your family. (((hugs)))

~Laura Iriarte/aka lauralovesart/twitter
http://lauralovesart.wordpress.com
http://lauralovesart.com
http://thesmartmomsnetwork.com

Posted by: Laura Iriarte | Jul 31, 2008 1:42:28 PM

You and your family are definitely in my prayers! I hope all works out well.

Posted by: Amber | Jul 31, 2008 1:44:38 PM

Stephanie,

My husband is an electrophysiologist in the Bay Area. I showed him your post and he suggested Andrea Natale in Austin, TX if you need a specialist.

Best to you and your family,
Eva

Posted by: Eva | Jul 31, 2008 1:56:23 PM

Gotta' love (not) a medical professional who asks if you're OK when your heartbeat is at 22 per minute. Shouldn't they be the ones to tell if you're OK or not.

Sorry if I added fuel to your fire.

They WILL sort this all out and they WILL give Phil the treatment he needs so you and the hops will have your tall glass of Beer back home soon.

Posted by: DamWrite | Jul 31, 2008 2:02:27 PM

I'm not sure this will make you feel any better, but my close friend's dad had a complete blockage that they just happened to pickup on. He's even a doctor. Anyway, he had surgery and he's been fine ever since.

Posted by: J | Jul 31, 2008 2:12:31 PM

many prayers and "strong" vibes comin' at ya.

Posted by: Sue | Jul 31, 2008 2:23:17 PM

There's a mantra I have, a little reminder when they're sticking me for chemo, or when we find a vein is no longer useful because it's so damaged from the drugs that they want to use a vein in my toes (&*@$):

This too shall pass.
This too shall pass.

There are great doctors in Austin, there is great strength in a body, there is great love, that you're right, shocks you better than any paddles.

I wish you the best.

Posted by: Kelly | Jul 31, 2008 2:29:44 PM

Oh Stephanie. May all the best joujou in the world be with all of you. (And I suspect, if Phil's heart is good enough for you to love as fiercely as you do, it is strong enough to get through this with flying colors). And lord knows, you've got enough heart for all of you.

Posted by: Eleanor's Trousers | Jul 31, 2008 2:47:43 PM

I hope everything goes well. He is young and youth surely puts the odds in his favor, right? You'll be in my prayers, stay strong and know that we're pulling for you.

Posted by: Vanessa | Jul 31, 2008 2:54:00 PM

I have no advice, no stories to tell, just very sincere prayers and warm wishes for you and your family.

Posted by: shelly | Jul 31, 2008 3:05:33 PM

Stephanie,

I am so sorry to hear this. I want you to know you, Phil and your little ones are in my thoughts and prayers.

Thinking of you...

Posted by: Marissa | Jul 31, 2008 3:32:47 PM

I love this poem and it helped me a lot.......

Footprints in the Sand!
(brasilian writer: Ademar Baross)

Last night I had a dream.
I dreamed I was walking along the beach with the Lord.
Across the sky flashed scenes from my life..........
For each scene, I noticed two sets of footprints in the sand: one belonged to me, the other to the Lord.

After the last scene of my life flashed before me, I looked back at the footprints in the sand. I noticed that at many times along the path of my life, especially at the very lowest and saddest times, there was only one set of footprints.

This really troubled me, so I asked the Lord about it. “Lord, you said once I decided to follow you, You’d walk with me all the way. But I noticed that during the saddest and most troublesome times of my life, there was only one set of footprints. I don’t understand why, when I needed You the most, You would leave me.”

The Lord replied, “My son, my precious child, I love you and I would never leave you. During your times of suffering, when you could see only one set of footprints, it was then that I carried you.”

Posted by: someone_new | Jul 31, 2008 3:33:37 PM

My thoughts and prayers are with you and the beans...

all my love

Posted by: Shelby | Jul 31, 2008 3:34:43 PM

Just writing back to admit I am a moron. I re-read the post and it clearly states that Phil is on blood thinners. Carry on....

Posted by: Susan | Jul 31, 2008 3:46:59 PM

Praying for you, Stephanie and Phil.

Posted by: Amanda G | Jul 31, 2008 4:09:42 PM

Sending healing thoughts to Phil. Will keep you and your family in my prayers. Take care.

Posted by: Cindy | Jul 31, 2008 4:21:20 PM

I sincerely hope and pray that everything is going well and that you are surrounded by people who care about you right now.

Posted by: Janel | Jul 31, 2008 4:35:54 PM

Thinking of you and Phil, and your little tater tots.

Posted by: Kerri Anne | Jul 31, 2008 4:54:38 PM

While it may not yet feel like this, these events certainly help us winnow our priority list, don't they? It is one good thing that will come out of something bad, terrible and scary. I'm putting my money on you and Phil coming through it all even stronger (physically for Phil) and (as a couple) than you ever thought possible. Keep writing.

Posted by: Mary | Jul 31, 2008 5:27:46 PM

Much, much love, luck and good vibes being sent your way, Stephanie.

Posted by: Jessie | Jul 31, 2008 5:43:08 PM

If well wishes can make any difference at all, know that the cosmos are being FLOODED with them for you and Phil.

Posted by: Shana | Jul 31, 2008 6:08:13 PM

Stephanie,

I'm so sorry. Atrial fibrillation (afib) is so frightening--for the patient and the family--especially when you have a risk of stroke.

I struggled with afib for several years myself before having a surgical ablation (mini-maze).

Afterwards, being afib-free, I couldn't stand on the sidelines and watch others, like your Phil, suffer, so I created a resource (http://www.StopAfib.org) for anyone with afib. It will save you a lot of research and answer a lot of your quesions.

I'm here to help you if I can. Just contact me with your e-mail address - just click on "Contact Us" at the site.

My thoughts and prayers are with you.

Mellanie True Hills
www.StopAfib.org

Posted by: Mellanie True Hills | Jul 31, 2008 6:31:49 PM

Sending very positive thoughts your way... take care and hang in there.

Posted by: Spandrel Studios | Jul 31, 2008 6:41:25 PM

Take care - my thoughts are with you! Perhaps you guys should move back to New York where there are doctors who actually know what's going on?!

Posted by: Arielle Wolovnick | Jul 31, 2008 7:30:19 PM

I had an ablation 4 years ago and it was faboooolous. Never a problem again. No meds, no problems. I will send some mojo in your direction

Posted by: Carly | Jul 31, 2008 9:20:55 PM

Arielle you are an idiot.

Posted by: HG | Jul 31, 2008 9:31:07 PM

Well wishes to you, Phil, and the kids.

Posted by: the other K | Aug 1, 2008 4:19:47 AM

All my positive thoughts, hopes, and prayers to you across the ocean...Everything is going to be well soon.
Best wishes, a hug from Italy

Posted by: Elisa | Aug 1, 2008 8:45:44 AM

Thinking of you guys - good luck with everything.

I'm 29 and had cardiac ablation a year and a half ago for extreme PVC's (not as bad as a-fib but similar in the 'fluttering' sensation). If you have any questions, feel free to email me.

I am so glad I did it - while the procedure wasn't fun and at first they thought it wasn't successful which was even more aggravating, the PVC's went away within 24 hours and I went from 30,000 a day to 8!! I didn't even realize how crazy my symptoms were/what a normal heartbeat felt like until afterwards, and now I'm so glad I did it.

A piece of advice:
* if you go to a teaching hospital, be very clear on who you want to perform the procedure. I had specifically said I wanted the guru/best doc of nyc to do it and he ended up peeking his head in a few times while a glorified intern did it. I was too groggy to verbalize anything. (And at least the intern was HOT) :)

Best of luck and good thoughts sent your way...I know this stuff can be scary.

Posted by: Kristen | Aug 1, 2008 12:26:58 PM

mamelah stay strong. everything is going to be ok. its ok to repeat that like a mantra and not question the workings of the universe. again - everything is going to be ok.
ruth

Posted by: ruth | Aug 1, 2008 7:02:02 PM

One of my colleagues is a gorgeous, girly, anaesthesiologist who often coos to patients about their beautiful carotids and fabulous airways... Quite wonderful, really.

Hope all's well.

Posted by: mikka | Aug 1, 2008 7:03:10 PM

In a later post you commented on the difficulty of getting good health information out of google. Please - contact your hospital to find out about their consumer health librarian, or even just their medical librarian (almost every accredited hospital is required to have some library services). They can help you find all the information you need, and even help you search PubMed for the latest research. If your hospital doesn't provide you with the answers you need, contact your local public library - they will have a lead for you. best of luck.

Posted by: t | Aug 1, 2008 7:23:44 PM

Hi Stephanie,

I said a prayer for you and your family. I hope Thursday's results turn out o.k. and that they are making more out of this than it really is; hope, hope and wish and pray.

Love,

Heather from Congress Ave.

Posted by: Heather O'Brien | Aug 4, 2008 7:47:17 PM

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